Tuesday, July 6, 2010


I can't publish comments on my last post.

Huppa Holland!!!!!!!

It is getting exciting today. Everyone dressed in orange and making preparations for the big game tonight. I only hope Uruguay don't spoil the party. If Holland win the world cup I am going to ask my bank for a big loan on the day after- I reckon the manager will be good for a million! Seriously though it would be great if Holland win. Amsterdam will go crazy- starting with my neighbours!
It is strange to be in the middle of the excitement. Orange and red white and blue are not my favourite colours for a party- especially in July- I even found myself humming 'The Sash My Father Wore' on the tram- it would be just my luck if I had been sat next to a Glasgow Celtic fan but I don't think any one was more annoyed than would be natural when some idiot starts whistling on a crowded sweaty tram.
Herrad has been up and down with the weather: heat and MS do not mix. When the clouds come over she can use her hands and when the sun comes out she feels dreadful. It is a big change for her from how she was. She loved sunny days and I loved to watch her enjoying them. She was super relaxed and looked great in her summer clothes (she has the best legs since Betty Grable http://www.youtube.com/watch?v=hj7ptNYO_Eo&feature=related)
I am so glad she has started to show them off again. They may not obey orders any more but they are still a lovely pair of legs and do not deserve to be hidden away on a hot day. The two of us are very much in love and the MS has intensified my feelings for her. She is the most loveable of people. I am feeling stronger and calmer than I have in a long while. I have cut my food and marijuana intake to the benefit of my body and mind- this was a barely concious procedure. I just felt less desire for both. Marijuana helps me to an extent but it is a double edged sword and can leave me confused and worried if I use too much or at inappropriate times. I now have a little in the evening and it knocks my socks off. Which is handy 'cos it is my preparation for going to bed. I really enjoy the hit and relax into music and then sleep. It is twenty years since I used alcohol. Drink is what I still crave when stressed. I know that drinking would be a disaster for me in any situation but as Herrad's caregiver it would be a disaster for her too. I am glad I do not have an addictive relationship to weed but I do know that my compulsive nature does make me want to use too much. Food, booze, caffeine and speed (in that order) are the killers for me. Only food remains a problem 'cos I can't stop taking it. Weed helps me a lot more than it hurts so I will stick with it for the moment, but in a controlled manner. I hope tonight will be blighted by alcohol abuse: but not my own! Huppa Holland!!!!!

Sunday, July 4, 2010

It has been a while since I posted. I hit a block in what I felt I could write. Much of what I want to scream about is deeply personal to Herrad. She is a strong dignified woman but MS leaves her hurt and vulnerable. It has taken her away ability to control her body and it can be humiliating for her. I make it as matter of fact and straight forward as I can when it happens but I know she feels it deeply so I have not found it easy to write 'Herrad crapped her knickers in bed this morning' and put it on the net. I know she shares a lot of her experience with her blog friends but that is her sharing her own life. I feel like a cad for talking about it.
Herrad posted some photos of her self that she found difficult to look at herself.http://accessdenied-livingwithms.blogspot.com/ I think she looks like a beautiful women who has MS but she saw herself robbed of her looks and strength.
Herrad says in her last post that she is accepting what she looks like now. Maybe I can write a bit now.