It has beeen a nice couple of weeks. I have had a cold for ages but it held off till the last few days to become a stinker so we have had a good couple of weeks. We had a lovely time for ourselves and a few nice visitors.
The January freeze ended yesterday and now we have a lovely mild sunny spring like day.
My misrable Xmass greeting is now superceded by a determindly optimistic happy new year to the whole world.
Steve asked about seizures in his comment- http://screamingrichie.blogspot.com/2008/12/scrooge-rules.html Herrad has not suffered anything we have not been able to help with marijhauna. The only other neuro drug she uses is Baclofen and we seem to have kept the worst symptoms under control. She can have spasms when stressed (being moved clumsily or sudden tempature changes) but never as severe as BR seems to be hit by. MS is very personal and no two people exhibit all the same symptoms so I can not say that the weed would help everyone but I do believe it helps so much with Herrad that I doubt if she would have much quality of life without it.
I repeat that the neurologist at the OLVG (Hospital) recomended it as the best drug to use as did Proffesor Polman at the VU (free universtiy hospital).
This is no help to those who live in prohibition areas. It is ironic that law abiding Americans are banned from recieving the best availble treatment.
This carer situation is crap. I feel for anyone forced into decieding for others. Herrad and I have the correct things in place and I know her wants but at some point I will have to help put them into action. Nothing in previouis experience has prepared me for this.
I can only think of plattitudes to say: I aint got no wisdom to share.
Birthday's and Spirited Away
2 years ago
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